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Mattie's Photo Gallery
New
Hopes for
a New Year
By Keith Landry
e all begin 2002 with new hopes for a new year.
We hope the months ahead will smooth out our problems and clear
us a path to health, happiness, and enlightened hearts. A young
man and his mom in Maryland offer all of us hope and inspiration.
They never take for granted health, happiness or the brightness
that beats within their hearts. Their lives are filled with Heartsongs.
Imagine being a kid and having the talent, intelligence,
and capacity to lift
up people and to improve the world, and the maturity to want to
do it. If
you've never heard of Mattie Stepanek and his Mom Jeni, you've
so far missed out on a unique dynamic duo. People who know them
cherish them, not just for the way they live, but also for what
they have created and shared with others.
You may have seen Mattie on the Oprah Winfrey
Show or conversing with Jimmy Carter on Good Morning America.
You might have thought, "What a wonderful whiz kid"
and quickly flipped your remote with a satisfied feeling. But
if you get to know this young advocate of acceptance and voice
for peace and the mother who has shaped much of his world, you
may walk away inspired or even amazed. We have a rare chance to
meet Mattie and his mom and to share some insights behind a young
writer's worldly messages.
They are messages shared through the written and spoken word-
messages weaved into verse and rhyme and meaningful lines. Mattie
Stepanek has a gift for poetry that many writers seven times his
age wish they were lucky enough to call their own. His collections
of poems, which are now larger than life, are called Heartsongs.
Mattie explains how he uncovered the word that
has become his trademark. "I first came up with the term
Heartsong when I was about five years old. I was creating some
poetry, and happened to be wearing a sweatshirt with a little
music maker inside the fabric. I leaned against something while
I was making my poetry, and the music began. I whispered, 'Mommy,
listen, that's my heartsong.' And I immediately wrote a poem,
called 'Heartsong,' that told all about it. A heartsong is something
deep inside of each of us. It's easy to hear when we are young,
but we sometimes get too busy or hurt or angry to listen to it
as we get older. And sometimes, we lose it. It's our sense of
why we are here. Our purpose. It may be to be a daddy or mommy,
or a firefighter or a waiter, or a child with a disability who
teaches others about patience and love and acceptance. And even
if we forget our heartsong, we can share someone else's, which
may re-awaken our own. That's why I share mine with everybody."
Mattie says he doesn't remember the first poem
he ever wrote, but there are
other memories, which linger. "I know that all of my early
poems were about how I felt after my brother, Jamie, died. Then
I began writing about nature and friends, then peace and prayers,
and now, I write about anything and everything."
The eleven year old, Lego-building, Harry Potter-admiring
poet, really has
the hang of it. Young Stepanek recalls, "I have written thousands
of poems, essays, short stories, and short chapter books since
I was three years old.
For school contests, my mom and I have bound about
a dozen books at home that are unpublished. Right now, I have
two published books "Heartsongs" and "Journey Through
Heartsong" that are both on New York Times and other Bestseller
lists. In April, a third book will be published called "Hope
Through Heartsongs". Two more books will be published as
a part of my current contract with Hyperion, and there will be
more after that. All of the books with '"heartsongs"
in the title are part of a series. But there will also be some
other books that are not part of the series."
Mattie says the best place to find his books
is Amazon.com and other major websites, which sell books. He also
does a fair number of book signings at many bookstores.
Mattie's mom, Jeni, remembers when she first realized
her son has a
remarkable way with words. "Shortly after Mattie's brother,
Jamie, died, I
became fascinated with Mattie's imaginative play. He acted out
elaborate
scenes that focused on the typical stages of grief (shock, denial,
anger,
bargaining, resolution
). As a writer, myself, I began journaling
Mattie's
'self-conversations' thinking that it may provide insights on
how
preschoolers deal with grief. Mattie began noticing that I would
watch him
and write while he was playing, so he asked my what I was doing
and why.
I explained to him how interesting his words were,
and he remarked that they were much like the poetry and meditations
we read together each night. Mattie was already reading by age
three, so he took an active interest in proofreading and editing
my notes, and was soon composing his own work without the need
for as much dictation."
Jeni began reviewing Mattie's recorded thoughts,
and together they'd space
them poetically. "Mattie really enjoyed the concept of writing
poetry, and
would sometimes compose a dozen poems in a single day. Across
the years, he has learned to type, and unless he is sick or very
tired, would rather do his own work privately, and then share
the results later."
Jeni realized she had little choice but to give
her young poet plenty of
space to create. "He used to ask me my opinion on his poetry
and essays, but now that he's a 'pre-teen,' he would rather I
just nod approvingly of his
finished work!"
And nodding turned out to be an under-motion and
an under-statement, as
readers of Mattie's poems found open places in their hearts for
his uplifting
messages. Imagine being a mom whose young son is touching other
people's lives through his creativity.
Ms. Stepanek remembers it well. "I was amazed.
Mattie had an innocent and uncensored way of speaking from his
mind, his heart, and his spirit. When he couldn't find the perfect
word to describe something, he would make one up.
As he has gotten older, his poetry has matured.
It's still beautiful and
moving, but it's different than his earliest works. Often, I am
still
amazed."
Oprah Winfrey and Jimmy Carter were also amazed,
and both leaders consider Mattie a close friend. Mattie says appearing
on Oprah's show was a wonderful experience. "People look
to Oprah for inspiration, which is why one of my wishes was to
share my message of hope and peace through her. People often ask
me what Oprah was like in person, and I tell them 'she's everything
we believe and want her to be.' She's truly spiritual and generous
and in love with people and life. I love being able to call her
my friend, not because of her show, but because of her as a human."
A lot of things changed after that national television
appearance. "After I
was on her show, everywhere I went people would say to me, 'Hey,
weren't you the kid on Oprah?' At first, it was hard. I felt unworthy
of praise and awkward about the attention. But then I got to where
I really liked being called the 'Oprah Kid.' Think about it
the initials are 'O.K.' In spite of everything I have been through
in life- my siblings have died, my mom's in a wheelchair, we had
a traumatic divorce, some of my friends have died, I have a very
serious and life-threatening condition- well, even with all of
that, I am O.K.!"
Things went from O.K. to blissful when Mattie
had the chance to talk with his biggest hero. Mattie says Jimmy
Carter has been his hero since he was six years old. The young
dove explains why. "He is a humble peacemaker and a very
friendly, spiritual, and sincerely caring person. I have read
lots of books by and about him, and I once made a video where
I re-enacted his life. It was called: 'Jimmy Carter: Peanut Farmer,
Politician, Peacemaker
The Perfect Hero.'"
Mattie had always wanted to talk peace with Carter
for just fifteen minutes.
"When I was in the hospital dying last June, he called me
and we talked peace for fifteen minutes. It was wonderful. He
answered all of my questions and inspired me to keep living, so
I could be like him and bring the hope of peace to others. Then,
he kept calling and emailing. That's what I call a REAL hero.
Not just a super hero, but a real one. I wish everyone was blessed
like me, to have real life heroes remind them about the good things
in life when life seems the hardest."
Mattie was fulfilled after the phone call, but
then fate took another turn.
"When GMA surprised me with meeting Jimmy Carter on the air,
well
everyone who knows me says they've never heard or seen
me so quiet. I was in total shock, and awe. I was in the presence
of true greatness, and was at a loss for words. Then, we hugged,
and I couldn't stop talking!"
I asked Mattie to let EnabledOnline inside his
mind to study his creative
methods. He thought it over and responded. " My poetry comes
from my heart and from my life experiences. I write about my feelings,
my life, my pain, my happiness, my dreams, my thoughts, and more.
Sometimes, a poem just comes to me, and I can't type fast enough
to keep up with my thoughts. Sometimes, an idea comes to me that
will become a poem, but I just capture a thought and write the
poem later (sometimes months or even years later)."
He offered a specific example of how his works
come together. "Sometimes, a poem is a part of a school assignment.
Like the poem about the Vietnam War Memorial
that was supposed
to be a Veteran's Day essay assignment that I put off forever
and really did NOT want to write. Finally, my teacher (my mom
since I am now homeschooled) told me I had to do the assignment
because it was overdue. I sat at the computer (not happily) and
somehow, produced one of my best poems. Once I got the idea about
the 'wall,' I couldn't stop. I sat for an hour staring, and then
suddenly wrote the whole poem in ten minutes. Usually, once I
finish a poem, it's done. Only once in a while do I go back and
change something."
Mattie admits there are still times when he has
to get used to the idea that
his Heartsongs can strike compelling chords that stay in his fans'
souls.
"Lots of people have told me or my mom that my poetry has
made a difference in their lives. I have kids and adults writing
and emailing to me all the time. Sometimes they have a disability,
sometimes they have lost someone they love, sometimes they are
interested in peacekeeping, and sometimes they just like my poetry
for no particular reason. I've had people tell me that hearing
me talk or reading my poetry has made their marriage better, or
their work place better, or their school work better, or their
life better. At first, it was really hard for me to hear all that."
He was, after all, still a kid. Stepanek remembers,
"People kept telling me
I was such an inspiration. I didn't feel worthy of that. I felt
like I had
a message and a gift, and that I was only doing what I was put
here on earth to do
share the message of peace and hope.
But my mom, and Jimmy Carter, and Oprah Winfrey, and some other
people who I trust and love, told me that it takes courage to
be a messenger. They told me it was okay to be proud, so long
as my pride led to humility and not vanity. I get so much mail
that it is hard to keep up with it, and because of school, I don't
have time to respond to all of it. But I try to respond as much
as I can even if it's just to say 'thank you' for writing or caring."
Mattie is still humble, but he's now saddled with
responsibility. He's a
pre-teen hero and rhythmic role model to many people. Thankfully,
he has his mother's guiding hand to steer him through it all.
Jeni sums up their relationship. "Mattie
and I have always been very close.
In many ways we are very much alike, and in other ways, we are
very
different. We are a source of inspiration for each other, although
there are
also a few times where we are a source of frustration for each
other, too!"
This single mom admits their lives are not always
easy. "Logistically, there
are many challenges to parenting a child with a disability. And,
there are
many challenges to being a parent with a disability. Combine the
two issues, and it creates even more challenges. I did not choose
to have a disability, or to have children with life-threatening
disabilities. But I do choose how to go through each day. It's
not always easy to 'celebrate life' as I preach. But it is possible.
It takes patience and perseverance. My faith
and my friends are a wonderful source of support, and Mattie and
I work
together as a team to get everything done. Even though we sometimes
get
depressed or angry or scared, we try to focus on 'how' rather
than 'why' when dealing with the difficult times."
So what about the times ahead? What do Mattie
and mom envision for 2002?
Mattie hopes his passion for peace will resound
this year. "I wish that each
person in the world would spend a little bit of time praying each
day this
year. Not a prayer for the self, or for some thing. But a prayer
for unity,
and tolerance, and hope, and peace."
This young man, who has already accomplished so
much, has simple goals for his own life. "For myself, I want
more time, to live and to share my
message. I hope to publish more books and continue public speaking.
My
family is my mom and I, and for us, I hope that we can continue
to spend time reading and playing together."
Mattie says he will be an advocate for several organizations in
the
disability movement this year. In addition to serving as the 2002
National
Goodwill Ambassador for the Muscular Dystrophy Association, he
also
participates in advocacy work for Children's Hospice International
and for
Children's National Medical Center in Washington, DC. "They
saved my life!" he points out.
It's a life he is living to the fullest in 2002.
This young messenger, with
wisdom far beyond his years, has a few more phrases for our EnabledOnline
audience. They are not words weaved into a poem, but they could
be a Heartsong all their own. "Thank you for taking the time
to listen to my message, and to read my poetry. I love people,
and I love life."
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