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Working
to Inspire a New Generation:
People With Disabilities Uganda
Launches Library for Children & Parents
By
Laurie Moy
rowing up with a disability in Uganda means that
all odds are against you. Children born with disabilities are
often left for dead in the countryside, or outright killed. If
the child's life is spared, he or she is likely to be hidden away
in the backyards, away from the community. Children with disabilities
are usually considered burdens on families already living in impoverished
conditions. Parents and family members do not usually know how
to care for these children, and support from the community is
rare.
The
alienation of these children and their families, stems from major
misconceptions about disability. Birth defects and other disabilities
are believed to be the results of curses, cast by evil spirits
to punish families. They are also believed to be contagious. Because
of these beliefs, many members of the community avoid families
affected by disability, out of fear. But these misconceptions
only serve to ostracize the very children and families who need
help and support the most. Instead of alienation, these families
need education, reassurance, and practical and emotional support.
People With Disabilities Uganda (PWDU)
www.pwdu.org is a national,
nonprofit, peace and disability rights organization, headquartered
in Kampala, Uganda. Since 1989 PWDU has been promoting awareness,
providing services and conducting trainings for adults and children
with disabilities. Projects include a skills building program
for preschoolers with disabilities, income generation programs
for adults with disabilities, small arms proliferation research,
and much more.
PWDU
has recognized, however, that although many of these children
succeed in learning social skills and activities of daily living,
and in some cases vocational skills, they are still left feeling
odd, out of place and unwanted in the community. Many children
growing up with a disability do not aspire to anything beyond
mere survival. They remain dependent on their families and avoid
becoming productive members of society. Similarly, the families
of these children do not encourage them to reach for their dreams.
They, too, are influenced by the prevailing misconceptions, and
they fail to recognize their child's full potential. The end result
is a cycle of stigma and only marginal (if any) improvement in
the lives of these children and their families.
So, on Tuesday November 13, children, parents,
local leaders and members of the Ugandan press all gathered to
celebrate the opening of PWDU's Children's Resource Library. Cheers
were heard as representatives from PWDU cut the ceremonial ribbon.
The library provides books, magazines, tapes and videos to children
with disabilities and their parents. They provide valuable information
about disability, and in most cases, they represent a first exposure
to positive attitudes about disability.
The entire library project was conceptualized
and implemented by PWDU's team of online volunteers. The team,
which was led by Jean Lin (USA), Angelica Hasbun (Costa Rica),
and Laurie Moy (USA), completed research and program development,
created web based donation systems, solicited donations, and developed
proposal documents. More than 200 books, magazines, cassette tapes
and videos were donated by organizations and individuals. Other
supplies, such as seating, shelves and wall decorations were also
donated.
On hand to open the library was Director Richard
Mugisha, Online Volunteer Coordinator Laurie Moy, UNDP's Deputy
Resident Representative Dan Temu, United Nations Volunteers Program
Officer for Uganda Shaila Khan, and Program Manager for Children's
Projects Bertha Kawooya. Scores of children and their parents
also turned out for the festivities. Two of the children's classes
performed songs to help celebrate the occasion.
PWDU and its online volunteers have great plans
for the library. Goals for the project include establishing a
circulation and lending system, training local adults with disabilities
to run the library, and of course, increasing the library's collection.
PWDU has set up a "wish list" with close to 100 books.
These are titles that would be appropriate and useful additions
to the library's collection. To view the list, visit the PWDU
web site at www.pwdu.org/projects/library.asp.
Contributions are always welcome.
PWDU believes the most important factor in a person's success
is their motivation to achieve. By providing information, resources
and examples of role models with disabilities, PWDU hopes to inspire
the children and their families to realize their full and limitless
potential.
lmoy@pwdu.org
is the email address for Laurie Moy.
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